#spoonie
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Reason 1838939483 why you may think I’m young and healthy but I am not. Imagine trying to write when you can’t grip (both because of my RA and Essential Tremor) or balance anything? .
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#thisismylife #rheumatoidarthritis #autoimmunedisease #invisibledisease #invisiblediseases #osteoarthritis #replacedjoints #chronicpain #chronicpainwarrior #rawarrior #spoonie #spoonielife #arthritisassociation #rheumaticdisease #fatigue #alwayssick #chronicallyill #spoonie #spooniesunite #essentialtremor #essentialtremorawareness #hashimotos #raynauds #eosinophilicesophagitis #atrialflutter #wolffparkinsonwhitesyndrome #degenerativearthritis
Amanda lizé - @autoimmune_amanda Instagram Profile - inst4gram.com
autoimmune_amanda
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Reason 1838939483 why you may think I’m young and healthy but I am not. Imagine trying to write when you can’t grip (both because of my RA and Essential Tremor) or balance anything? . . . #thisismylife #rheumatoidarthritis #autoimmunedisease #invisib

San Jose, California
When you have to get a bigger pill calendar..... #ehlersdanlossyndrome #gastroparesis prob #EDS #cEDS #zebrastrong #chronicillness #chroniclyill #spoonie #spoonielife #chronicpain
Kacie - @bickeringmoss Instagram Profile - inst4gram.com
bickeringmoss
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When you have to get a bigger pill calendar..... #ehlersdanlossyndrome #gastroparesis prob #eds #ceds #zebrastrong #chronicillness #chroniclyill #spoonie #spoonielife #chronicpain

Naval Submarine Base Bangor
What a lil finger placement’ll do for a toothless kid who may have to postpone #dentalwork until these medical bills stop jumping the hell outta me 🤣🤷‍️ •
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#wcw #eventhoughihurtismile #Lymie #Spoonie #invisibleillness #Encouraged #InTheMeanTime #InspiringMe #LymeTeeth #TyVSLyme: #Road2Remission  #Chapter29  #SickGirlSwag #WCE 🥰 #🤟
Ty 💚💪 - @ty_inspire Instagram Profile - inst4gram.com
ty_inspire
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What a lil finger placement’ll do for a toothless kid who may have to postpone #dentalwork until these medical bills stop jumping the hell outta me 🤣🤷‍️ • • • • • • #wcw #eventhoughihurtismile #lymie #spoonie #invisibleillness #encouraged #inthemean

We worked on a lot today. We started some basic commands and getting to know her name. I had to get a photo of me holding her at this size cause it will be a change when she is over 100 lbs. This puppy makes me happy #chronicallyhappychallenge

What makes you happy?

#servicedogintraining #sdit #servicedog #spoonie #chronicillness #chronicillnesswarrior #mentalhealth #happy #happiness #health #healing #dog #dogsofinstagram #servicedogsofinstagram
Christina Frost - @misschristinafrost Instagram Profile - inst4gram.com
misschristinafrost
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We worked on a lot today. We started some basic commands and getting to know her name. I had to get a photo of me holding her at this size cause it will be a change when she is over 100 lbs. This puppy makes me happy #chronicallyhappychallenge What

Sedley, Saskatchewan
How about a little more support from our government representatives? We’d like funding for research, accessible treatments, affordable medications, and to be taken seriously. We know our bodies. Trust us!
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#rheumatoidarthritis #autoimmunedisease #invisibledisease #invisiblediseases #osteoarthritis #replacedjoints #chronicpain #chronicpainwarrior #rawarrior #spoonie #spoonielife #arthritisassociation #rheumaticdisease #fatigue #alwayssick #chronicallyill #spoonie #spooniesunite
Amanda lizé - @autoimmune_amanda Instagram Profile - inst4gram.com
autoimmune_amanda
0

How about a little more support from our government representatives? We’d like funding for research, accessible treatments, affordable medications, and to be taken seriously. We know our bodies. Trust us! . . . #rheumatoidarthritis #autoimmunedisease

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Not medical related but, Asking the important questions () : should I dye my hair fun colors again or keep it as is?  I have some boxes of dye and was wondering about honest opinions and then if so, of what colors and styles to do. 🤔🤔 Let me know! #chronicallykatie #currentlook #hair #hairstyle #colorfulhair #hairdye #color #choosehappiness #itsthelittlethings #likemyhairgrowingback! :D #itslittlebutgettinglong! #indecisive #opinionsplease #spoonie #spoonielife #spooniesjustwannahavefun #girly
Katie Taaffe - @chronicallykatieee Instagram Profile - inst4gram.com
chronicallykatieee
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Not medical related but, Asking the important questions () : should I dye my hair fun colors again or keep it as is? I have some boxes of dye and was wondering about honest opinions and then if so, of what colors and styles to do. 🤔🤔 Let me know! #c

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Wow  what a full on day we’ve had! It started at 9am when the moving company brought me my stuff, Bae and I unpacked for 2 hours before heading into town. I bought a new pair of reading glasses  ️, some more high-waisted shorts and high-waisted jeans from Cotton on for $50, oh and some cool sparkling  slides! #watchthisspace for fashion pics! We then stopped at a cafe for lunch  before winz at 1pm (where we forgot to ask about a food grant which is one of the main reasons we went ) and Cait’s GP appointment out of town. Now we’re both #outofspoons 🥄 and having a nice cold cider. I’m gonna spend the evening watching Heroes and reading  my book  (It feels really strange but good to have a life worth telling!)
Hope y’all have had a good Thursday ️
🧜‍️🧜‍️
#read #reading #novel #book #bookstagram #bookworm #booklover #bookphoto #bookaholic #booknerd 🤓#booknerdigans #bookgeek #ilovereading #ilovebooks 🧜‍️🧜‍️
#spoonie #spoonielife #spooniewarrior #spooniefamily #spooniefam #chronicpain #chronicpainsucks #chronicpainwarrior #chronicpainwarriorprincess
🧜‍️🧜‍️
#keepsmilingkeepfighting
Katie-Rose 26 Bipolar2/DPD - @kaotic.kreature Instagram Profile - inst4gram.com
kaotic.kreature
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Wow what a full on day we’ve had! It started at 9am when the moving company brought me my stuff, Bae and I unpacked for 2 hours before heading into town. I bought a new pair of reading glasses ️, some more high-waisted shorts and high-waisted jeans

Wednesday hangs.
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#VitaminC
#mytribe 
#functionalmedicine
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No better support group than my IV room #spoonie peeps. They get it. Old friends and new. Sat next to a 94–year-old pistol who was kickin’ ass and taking prisoners. I love these people.
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#linuspauling #lymedisease #pots #mastcelldisease #lyme #mthfr #chronicillness #disability #detox #autoimmune #holistic #mcas #silentillness #dysautonomia #healthfreedom #meditation #butyoudontlooksick #moldallergy #vaccineinjury #vaxxed #epigenetics #community #dirtygenes #integrativemedicine #methylation #multiplechemicalsensitivity
RRH - @r_riding_hood Instagram Profile - inst4gram.com
r_riding_hood
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Wednesday hangs. . #vitaminc #mytribe #functionalmedicine . No better support group than my IV room #spoonie peeps. They get it. Old friends and new. Sat next to a 94–year-old pistol who was kickin’ ass and taking prisoners. I love these people. . .

*puts hand up* “this is the rock and roll sign right?!” 🤘
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But for real. Three months ago today I had a surgery to remove stage iv endometriosis. How did I get stage iv #endo you ask? Why did the tissue spread to all parts of my insides, causing widespread pain? Well, my friends-It’s because no doctor would operate on me, because they did not believe I had #endometriosis that was severe enough for treatment 🤭! One in ten women has endo and there’s no known cure! Women suffer for an average of 10 years before getting a diagnosis.
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 Why is this diagnostic delay a big deal if it’s chronic you ask? Well, it’s because of what were told within the DECADE-
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That our pain wasn’t real. .
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That we were hypochondriacs. .
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That we needed prozac not hydrocodone. .
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That if we just get pregnant we’ll feel better .
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Just the usual right 🤷‍️. But I guess the point of this is just to let all of you know that this is very real. It’s scary. It takes a whole family to get through this. But I can also say 3 months post op that I do feel very powerful. More powerful than I’ve felt in awhile, and that has to count for something
🎗Endo Goddess 🎗 - @endo_goddess_ Instagram Profile - inst4gram.com
endo_goddess_
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*puts hand up* “this is the rock and roll sign right?!” 🤘 . . But for real. Three months ago today I had a surgery to remove stage iv endometriosis. How did I get stage iv #endo you ask? Why did the tissue spread to all parts of my insides, causing w

Rancho Mirage, California
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@endo_goddess_ #endobelly #endosisters #endocommunity #spoonie #bloggersofinstagram #endostrong #fightlikeagirl #endogoddess #adenomyosis #chronicpain #chronicillness #chronicillnesswarrior #fuckendo #endoawareness #latinablogger #periodproblems #endowarrior #1in10 #endosister #endosupport #endocommunity #endoblogger #bayarea #womenshealth #endocommunity #pms #hormones #modeling #photographer

@spdlovers Jemput singgah ke IG saya. Mungkin saya boleh membantu

This should be a fun two weeks.
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#steroidtaper #inflammation #fibromyalgia #chronicillness #somanymeds #spoonielife #spoonie #365project #project365
Mary 💕 - @fieryxspirit Instagram Profile - inst4gram.com
fieryxspirit
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This should be a fun two weeks. . . . . . . . . . . . . . . . . . . . . . . #steroidtaper #inflammation #fibromyalgia #chronicillness #somanymeds #spoonielife #spoonie #365project #project365

Now on the other side of 6+ years of chronic illness, I’m finding that I’m able to say the things I always technically knew were true but couldn’t accept for myself.
⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀
It’s true that you are not your illness. But far more than that popular phrase, you do not equal illness. There is no possessive pronoun needed.
⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀
But even more than that, you are no less of a person because of illness.
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You are no less of a person because of debilitating chronic illness.
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You are no less of a person because of a decade of chronic illness you are still drowning under.
⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀
And that illness has zero effect on your worth, your lovability, your legitimacy as a human being, and your value.
⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀
I know that’s hard to fathom when illness has taken so much from you and who you are.
Kacie Lynn Fleming - @kacielynnfleming Instagram Profile - inst4gram.com
kacielynnfleming
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Now on the other side of 6+ years of chronic illness, I’m finding that I’m able to say the things I always technically knew were true but couldn’t accept for myself. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀ It’s true that you are not your illness. But far more

Comments

@kacielynnfleming #liveauthentic #mytinyatlas #frommywindow #windowview #windowsofinstagram #myview #treestagram #photoart #thesouth #snowstagram #snowgram #instasnow #holistichealth #holistichealing #peoplehopetribe #chronicillness #healinghappens #invisibleillness #fibromyalgia #cfs #lymedisease #neuroplasticity #dnrs #spoonie #invisibleillness #chronicillness #youarepriceless #priceless #empoweredhealth #thereishope

Oh wow! Thank you all so much for 500 Followers! Hard to imagine that anyone is interested in my life & this journey with chronic & mental illness, but especially 500 of you!
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Thanks for the love & support! I am so grateful for all the friends I’ve made here, my Spoonie Family, and fantastic followers! 
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#500 #500followers #thanksfor500followers #spoonie #spooniecommunity #family #friends #igfamily #chronicillness #raredisease #zebrawarriors #chronicallyill #mentalhealth #mentalillness #chronicallyraven
Raven - @chronicallyraven Instagram Profile - inst4gram.com
chronicallyraven
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Oh wow! Thank you all so much for 500 Followers! Hard to imagine that anyone is interested in my life & this journey with chronic & mental illness, but especially 500 of you! • Thanks for the love & support! I am so grateful for all the friends I’ve

Finished! Really, really enjoyed this book! There are two tangent storylines, one present day (or at least recent) & one taking part in the 2WW. Music intertwines both storylines, & there's a hefty focus on the terror of being Jewish during the second world war. A really interesting, gripping read.
304 pages
9/10
#bookworm #ilovebooks #ilovereading #booklover #books #book #bookstagram #disabled #instabooks #disabled #spoonie #dallyreviewsabook
Dally - @booksdigitalartdisability Instagram Profile - inst4gram.com
booksdigitalartdisability
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Finished! Really, really enjoyed this book! There are two tangent storylines, one present day (or at least recent) & one taking part in the 2WW. Music intertwines both storylines, & there's a hefty focus on the terror of being Jewish during the secon

Hey y'all I wanted you to meet my crew!!! This is my ostomy support group. We are in the Chicago land area located at Loyola medical center in Maywood, IL we meet every 2nd Wednesday of the month and today was our little holiday party. I brought my mama with me and she got to meet my lovely ostomy family. 
Support groups are such a  vital part of our survival as people with chronic illness. We need each other and we care for one another. We laugh we cry we hug we tell jokes or as I like to call them dad jokes  I've felt welcome since the day I meet them all. A special thanks to our ostomy nurse Nancy who organizes our meetings and has made it possible for us to have a safe space to be ourselves. If anyone would like to join our little group please let me know I'd love to meet you all.
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#stomalove #bagout #ostomy #stoma #ostomybag #ostomyawareness #ostomyfashion #ostomylife #bagbabes #bagcovers #ostomate #ulcerativecolitis #ostomylife  #spoonie  #pigletchronicles #nocolonstillrollin #getyourbellyout #chronicallyill #supportgroup #awareness Loyola Medicine
jenell - @piglet_chronicles Instagram Profile - inst4gram.com
piglet_chronicles
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Hey y'all I wanted you to meet my crew!!! This is my ostomy support group. We are in the Chicago land area located at Loyola medical center in Maywood, IL we meet every 2nd Wednesday of the month and today was our little holiday party. I brought my m

 It’s official, just call me coach Shelly.

Each day we have the chance to find gratitude, believe in ourselves, and dare to be happier than we were yesterday.

When I realized taking care of myself and living a healthy lifestyle was a key ingredient to this, I leveled up. Now, it’s like second nature. Small modifications over time created big changes. You can do this too at your own pace! Next thing ya know, your one of “those healthy people.” Now I can say that I truly understand why they choose to be this way.

Stop by and visit my wellness practice @lemonstomint Say hi and sign up by clicking on my website (in bio) and receive motivational emails and nutrition tips that’ll help your mind, body, spirit and well-being.

#fillyourcup #healthcoach #holistichealer #wellnessfordays #chronicillnesscoach #spooniecoach #spoonie #beempowered #iinhealthcoach
SHELLY HAINES - @sunnygirl808 Instagram Profile - inst4gram.com
sunnygirl808
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It’s official, just call me coach Shelly. Each day we have the chance to find gratitude, believe in ourselves, and dare to be happier than we were yesterday. When I realized taking care of myself and living a healthy lifestyle was a key ingredient

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@seaspriteyogi Beyond excited for you and this next adventure! Thank you for speaking your truth and sharing your magic!

Like Anna and Elsa I'm learning to #letitgo  #bronchitis has thrown off my #holiday #schedule instead of getting upset or pushing my body to its breaking point, I'm letting go and and accepting what I can do...  outside of putting up my #christmastree no other decorations will be put up, which is fine by me since I'd rather use that energy at #disneyland and #knottsberryfarm this month.  Living with one or more #chronicillnesses requires #tradeoffs  What tradeoffs have you made this holiday season?

#frozen #chronicpain #chroniclife #illness #mentalhealth #healthandwellness #painmanagement #fibromyalgia #psoriaticarthritis #psoriasis #endometriosis #arthritis #invisibleillnesses #spoonie #selfcare #selfhelp #christmas #christmasfantasy #parade
Cynthia Covert - @the_disabled_diva Instagram Profile - inst4gram.com
the_disabled_diva
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Like Anna and Elsa I'm learning to #letitgo #bronchitis has thrown off my #holiday #schedule instead of getting upset or pushing my body to its breaking point, I'm letting go and and accepting what I can do... outside of putting up my #christmastre

I’d love to hear from #anthembluecrossblueshield who says I have no medical need for pain pills or anti-nausea pills. Since you, and the #StateofCalifornia based it on one year of reports (from my GP only) and did not review my surgery reports, rheumatology records, physical therapy reports, pain-management records or...anything actually related to my health, I’m baffled. You didn’t even want the X-rays or reports detailing the degeneration of my joints. You’ve told me to contact a lawyer if I disagree. How do I pay for that? @propublica , can you help? @npr , can you help? We need some awareness and attention.
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#rheumatoidarthritis #autoimmunedisease #invisibledisease #invisiblediseases #osteoarthritis #replacedjoints #chronicpain #chronicpainwarrior #rawarrior #spoonie #spoonielife #arthritisassociation #rheumaticdisease #fatigue #alwayssick #chronicallyill #raynauds #essentialtremor #atrialflutter #eosinophilicesophagitis
Amanda lizé - @autoimmune_amanda Instagram Profile - inst4gram.com
autoimmune_amanda
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I’d love to hear from #anthembluecrossblueshield who says I have no medical need for pain pills or anti-nausea pills. Since you, and the #stateofcalifornia based it on one year of reports (from my GP only) and did not review my surgery reports, rheum

San Jose, California
Very steamy tea. Plz help my hips.

#painrelief #chronicpain #chronicillness #spoonie
Cassandra "Katy" Snow - @tarotcassandra Instagram Profile - inst4gram.com
tarotcassandra
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Very steamy tea. Plz help my hips. #painrelief #chronicpain #chronicillness #spoonie

I still remember when I was in too much pain to pick up my kids. When sitting on a park bench in tears wishing I could run and play with them was a reality . ...I was on 13 medications, and told I would be on them for the rest of my life. I believed them when they told me I would be in a wheelchair by the time I was 30. My journey and my story are not easy.....it took completely changing my life for me to find survival. My struggle is far from over, I will be a #spoonie for life. Some days are harder than others, but I’m not done fighting.
Janis Fegter - @lov3lifeb3str0ng Instagram Profile - inst4gram.com
lov3lifeb3str0ng
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I still remember when I was in too much pain to pick up my kids. When sitting on a park bench in tears wishing I could run and play with them was a reality . ...I was on 13 medications, and told I would be on them for the rest of my life. I believed

Lifetime Fitness
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@andrewalmasey Message us to join forces 💪

@fefe.0514 I love your abs! Train meeeeee lol

Keep meaning to do updates but I feel like there’s always so much info that it’s more of an info dump. I guess the main thing right now is that they found some random, rare, bacteria in my sinuses that I could have had for a really long time that’s been causing my chronic sinusitis so I’m starting an IV antibiotic 3x a day for 2 weeks. So let’s see how this goes  #chronicillness #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #moldtoxicity #gadolinium #heavymetaltoxicity #gastroparesis #chronicpain #spoonie #piccline
madeline 🌸🥄 - @warriorspoonie__ Instagram Profile - inst4gram.com
warriorspoonie__
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Keep meaning to do updates but I feel like there’s always so much info that it’s more of an info dump. I guess the main thing right now is that they found some random, rare, bacteria in my sinuses that I could have had for a really long time that’s b

So I went to a doctor today to establish primary care. And this woman looked at me like all I wanted was for her to fill my tramadol. Like no. I'm here for you to become my doctor, and to get my birth control and Zoloft filled. She then tried to tell me that I should come off my Zoloft because I'm only 18 and did I really need birth control since I wasn't sexually active. 
#doctorssuck #chronicillness #chronicpain #chronicpainwarrior #chronicallyill #notanaddict #ehlersdanlossyndrome #eds #hypermobility #hypermobilitysyndrome #heds #pots #gastroparesis #spoonie
𝙺𝚊𝚢𝚌𝚎 - @chronically.kayce Instagram Profile - inst4gram.com
chronically.kayce
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So I went to a doctor today to establish primary care. And this woman looked at me like all I wanted was for her to fill my tramadol. Like no. I'm here for you to become my doctor, and to get my birth control and Zoloft filled. She then tried to tell

•Welcome to my 12 Days Of Giveaways•
DAY ONE: Win my top favorite Christmas Movie!
TO ENTER:
1) Like this post
2) Follow @abbysgotguts & @abigailformas
3) Tag a friend below: tag each friend separately! Each tag is an extra entry️
4) Comment your favorite Christmas Tradition
5) Put this on your story for 5 extra entries!
6) Enter by 12/24 - the winner is announced on Christmas!
{USA only due to shipping costs}
Abby🙆 - @abbysgotguts Instagram Profile - inst4gram.com
abbysgotguts
1

•Welcome to my 12 Days Of Giveaways• DAY ONE: Win my top favorite Christmas Movie! TO ENTER: 1) Like this post 2) Follow @abbysgotguts & @abigailformas 3) Tag a friend below: tag each friend separately! Each tag is an extra entry️ 4) Comment your fav

Comments

@abbysgotguts #gastroparesis #colonicinertia #digestivetractparalysis #endometriosis #chronicmigraines #spoonie #chronicillness #invisibleillness #giveaway #contest #12daysofgiveaways

#TBT to last week when my hair and makeup were doing exactly what I want them to ‍️ I’ve been so exhausted after our trip to Edinburgh on Monday that I’ve spent most of my time in bed trying to get over a migraine... normally I can avoid them now I have my glasses but it’s time for my 3 month follow up about the root cause of my migraines and check for the signs of inflammation they saw the last time so I’m hoping if I do need a stronger prescription that it’ll help me get over this!  the last couple of days have been spent with me napping the majority of the time and being really well looked after by Stuart so it hasn’t been all bad! ️ I did however get an interesting text today from the hospital and I’ve to book in for an emergent ultrasound. I’ve no idea where the ultrasound is from as I had my kidney one about 6 weeks ago so it could be a booming error or they’ve discovered something from my MRIs or there’s a problem with my bloods that they need to investigate. I was too nervous to call them up today about it because I’d just got excited about being done with hospitals for the rest of the year so I really don’t want to deal with any more news that’ll disrupt my 2 weeks off hospital over the Christmas period. I’ll definitely need to call back up tomorrow to figure out what’s going on and it’ll be a Christmas miracle if there is a booking error!  at least if it is because there’s an issue with my pelvis or abdomen be it from the Crohn’s, Endo or bladder damage then it’s a step closer in getting my next surgeries and treatments sorted! I’ve been in such a better place recently in how I’ve been feeling mentally because my health seems to have stayed the same for a good few weeks and now I’m used to it I have a routine and feel comfortable that I should get through the holidays without too much drama but I’m really glad we didn’t book to go out the country for our winter break just in case and are going to Edinburgh instead because even if there is an issue I can get to my doctors no problem and won’t have to miss out like we did with Krakow in January!
Jen McGregor - @crohnieclothing Instagram Profile - inst4gram.com
crohnieclothing
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#tbt to last week when my hair and makeup were doing exactly what I want them to ‍️ I’ve been so exhausted after our trip to Edinburgh on Monday that I’ve spent most of my time in bed trying to get over a migraine... normally I can avoid them now I h

Comments

@crohnieclothing #blogger #pinkhair #fashion #health #life #ibd #crohns #ostomy #pinkhair #invisibleillness #chronicillness #glasgow #student #motd #mentalhealth #spoonie #endometriosis #ankylosingspondylitis #pinkhair #alternative #ibdawareness #pale #effyourbeautystandards #spooniestrong #autoimmune #fightlikeagirl #disability #beyourself #nocolonstillrolling #disabled

@monakhamischicnyc Simply gorgeous doll 📷 We want to feature you in our brand! Lets get you sent some items and see your photos! 💍 Click my link to find out more so we can chat

I’ve had a migraine for almost thirteen days and it’s left me bedridden and I’ve found nothing to calm the pain and it’s truly eating me alive. I see this vein specialist on Monday that is doing a tube procedure to try and make it go away and I have to suffer until then and I just hate feeling helpless. I can’t even look at lights it’s stupid. 
#chronicillness #chronicpain #autoimmunedisease #eosinophiliccolitis #spoonie #chronicmigraine #blurry #blurryphotography
lonely - @diseasedartist Instagram Profile - inst4gram.com
diseasedartist
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I’ve had a migraine for almost thirteen days and it’s left me bedridden and I’ve found nothing to calm the pain and it’s truly eating me alive. I see this vein specialist on Monday that is doing a tube procedure to try and make it go away and I have

This is a more intense version of the kit I usually care but for those who have asked this is an oops kit. It has paper towels, wipes, enzyme remover, hand sanitizer, gloves, and a roll of poop bags. With us leaving so soon I am in pre-trip panic mode. I really can’t stand this part but somehow it will all get done. But here in a few I’m going to take a Xanax and will definitely be taking one tomorrow afternoon  cause it will only get worse as we get closer  but I got a start on Hars stuff. Now just to get mine together and finish the last stretch of gear. ️ I can do this  hopefully 🤞
12/12/18 _ 2 years. 
#thegoldenlife #sd #servicedogsofinstagram #servicedog #workingdog #dogtraining #servicedogintraining #tasktrained #respectthevest #goldenretriever #goldensofinstagram #goldensofcharlotte #happygolden #goldenlife #chronicillness #invisibleillness #spoonie  #medicalequipment
Harley Anne CGC, PAT, TKA - @harleys_bigadventure Instagram Profile - inst4gram.com
harleys_bigadventure
5

This is a more intense version of the kit I usually care but for those who have asked this is an oops kit. It has paper towels, wipes, enzyme remover, hand sanitizer, gloves, and a roll of poop bags. With us leaving so soon I am in pre-trip panic mod

Comments

@harleys_bigadventure @theworkingviolet that and my body is fighting hardcore and I’m getting sick 🙃😂

@harleys_bigadventure @theworkingviolet I hope yalls trip goes well!

Hope is stronger than fear. This only took me almost 2 weeks  My wrist and finger pains have been so much worse lately. I think it’s because of this cold weather here. We might even get snow tomorrow or Friday! ️
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#endometriosis #endo #endostrong #endosisters #endosister #endoawareness #endometriosisawareness #endowarrior #endobelly #endopain #endometriosispain #chronicillness #chronicpain #chronicallyill #spoonie #spooniestrong #invisibleillnessawareness #invisibleillness #fibromyalgia #fibrowarrior #ibs #constipation #interstitalcystitis  #interstitialcystitisawareness #hypermobility #mentalhealth #depression #anxiety #ptsd #butyoudontlooksick
Laura’s Endometriosis Life 🎀 - @livingwithendometriosis_ Instagram Profile - inst4gram.com
livingwithendometriosis_
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Hope is stronger than fear. This only took me almost 2 weeks My wrist and finger pains have been so much worse lately. I think it’s because of this cold weather here. We might even get snow tomorrow or Friday! ️ .. .. #endometriosis #endo #endostron

It’s finally done!!
They let me out a day early so I’m home now and resting in my own bed. All went really well, details to follow later when I’m a bit more together mentally 
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#surgerynumber2 #excisionsurgery #infertility #realfaceofendo #endo #endometriosis #endosucks #endowarrior  #endosister #endometriosisisreal #endoawareness #helpusfindacure #weneedacure #chronicpain #chronicillness #invisableillness #butyoudontlooksick #spoonie #endobelly #painsucks #womensupportingwomen #femalehealth #endoaustralia #1in10 #fightlikeagirl #mystupidendo
SarahMonster - @my_stupid_endo Instagram Profile - inst4gram.com
my_stupid_endo
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It’s finally done!! They let me out a day early so I’m home now and resting in my own bed. All went really well, details to follow later when I’m a bit more together mentally . . . #surgerynumber2 #excisionsurgery #infertility #realfaceofendo #endo

Comments

@skyggedans21 Ouch! Hope your not too sore! ❤️

@my_stupid_endo @skyggedans21 it’s ok as long as I don’t move at all haha! Can’t really walk very well. Will just have to lie in bed and boss Rash around 😉

I had back spasms last night which left me immobile this morning. I couldn’t move around in my bed, much less get out of it. I couldn’t even think about driving to work, so I didn’t. I was only going to be there for a couple of hours anyway before PT. I struggled to get up and go, but I made it. Would anyone have known all this happened by looking at me while I was out of the house? Negative, ghost rider. #adayinthelife of a #spoonie 🥄🥄
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Personal account: @onlygagacanjudgeme
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#endometriosis #fibromyalgia #adenomyosis #pain #chronicpain #endo #endofendo #fuckendo #cucharita #chronicillness #spooniespice #endometriosisawareness #endowarrior #fibrowarrior #invisibleillness #spooniestrong #fightlikeagirl #pelvicpain #spoonieproblems #fatigue #chronicpainwarrior #spoonielife #periodproblems #chronicfatigue #sick #butyoudontlooksick #sigh
kim - @spooniespice Instagram Profile - inst4gram.com
spooniespice
0

I had back spasms last night which left me immobile this morning. I couldn’t move around in my bed, much less get out of it. I couldn’t even think about driving to work, so I didn’t. I was only going to be there for a couple of hours anyway before PT

Texas
People will judge everything you do, so you do you
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#wakeandbake #bongrips #bongripbabe #kushclouds #cloudqueen #staylit #maryinmylungs #medicating #ommp #mmj #pdxstoners #chronicpainwarrior #spoonie #NotAGirl #cannababes #cannaqueers #stonerbarbies #stonerbabes  #prettypotheads #cutestoners #cannafam #SeeOurCrew #herbqueens  #babeswhosmokeweed #fueledbythc #nonbinarybabes #goodvibesonly #hotboxtheinternet
Naia Nasreem - @naia507 Instagram Profile - inst4gram.com
naia507
1

People will judge everything you do, so you do you . . . #wakeandbake #bongrips #bongripbabe #kushclouds #cloudqueen #staylit #maryinmylungs #medicating #ommp #mmj #pdxstoners #chronicpainwarrior #spoonie #notagirl #cannababes #cannaqueers #stonerbar

Panama City, Panama
Comments

@fullybakedstoner Love this photo. Dm us 🌬

Some close ups and a full body shot of today's look! 
Brows: @distinctionbrowandlash #indeliblegelbrowliner - limelight and blue fish @elfcosmetics clear brow gel
Eyes: @colouredraine #vividpigments - yacht life @anastasiabeverlyhills #prismpalette - obsidian, osiris, pyramid and lucid @juviasplace #zulupalette @bhcosmetics #duolighthighlightpalette @nyxcosmetics eyeliner - green shimmer @nickaknewyork eyeliner - gold
Face: @maccosmetics #shinyprettythings bronzer @nyxcosmetics #nyxombreblush @bhcosmetics duolight highlight palette @bareminerals #bareskinconcealer 
Lips: @ciatelondon #glitterflip - iconic

#makeup #makeuplover #colorfuleyeshadow #eyeshadow #colorfulbrows #greenhairdontcare #glittereyeshadow #wingedliner #eyelooks #beautyblogger #zebrawarrior #spoonie #elhersdanlossyndrome #disabledandcute #chronicillness #fibromyalgia #fibroflare #potssyndrome #selfcare @kaleenadeshawn #zebrawarriorpaint
war paint - @zebrawarriorpaint Instagram Profile - inst4gram.com
zebrawarriorpaint
1

Some close ups and a full body shot of today's look! Brows: @distinctionbrowandlash #indeliblegelbrowliner - limelight and blue fish @elfcosmetics clear brow gel Eyes: @colouredraine #vividpigments - yacht life @anastasiabeverlyhills #prismpalette -

Comments

@allysachicnyc We need a beauty such as yourself in our brand taking glam shots for the fall season 💙Lets get you featured on our main page. Lets connect through my link

After my routine checkups, I received the worst news that I never wanted to hear. My awesome rheumatologist is retiring. Unless you have rheumatoid disease, don’t comment. It’s not as simple as just finding another doctor.

While other doctors lost hope in me, she never did. She never let me lose faith and always gave me hope.

I was dumbfounded by the news. Just trying not to stress out about it in order to keep myself out of a flare.
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#rheumatoidarthritis #rheumatoiddisease #autoimmunedisease #autoimmune #rheumatology #sad #spoonie #arthritis #noitsnotjustarthritis #rheumfit
Erick - @erickohlyas Instagram Profile - inst4gram.com
erickohlyas
0

After my routine checkups, I received the worst news that I never wanted to hear. My awesome rheumatologist is retiring. Unless you have rheumatoid disease, don’t comment. It’s not as simple as just finding another doctor. While other doctors lost h

Yum #smartsweets as someone who candy and sugar is my weakness these are a game changer!!! #health #wellness #babysteps #spoonie #fitness #fibromyalgia #warrior #newday #healthylifestyle #healthychoices #ishouldbuystocksinsmartsweets
zm_health_wellness - @zm_health_wellness Instagram Profile - inst4gram.com
zm_health_wellness
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Yum #smartsweets as someone who candy and sugar is my weakness these are a game changer!!! #health #wellness #babysteps #spoonie #fitness #fibromyalgia #warrior #newday #healthylifestyle #healthychoices #ishouldbuystocksinsmartsweets

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@livelifegetactive Looking good! 😍❤

@bfirst_apparel339 Join wit us apparel clique!! Stare our info profile like now

Some of the more unique ornaments on our family tree! We have LOADS of snowflake ones (I want a whole snowflake tree) and many with our family name/personalized ones. But these are a bit different. Lol. Obviously the Firefly ones I got Dan one year. And some made by friends. Maybe a few that we made as a family that deviate from the instructions. I love it. I can't look at the tree and not smile. Even at least a little. Nobody has accused us of being boring   
#happyholidayproject #holidays2018 #holidayseason #christmastree #christmas2018 #christmas #yule #doingitmyway #doingme #ornaments #serenity #Firefly #fireflyfan #fireflytv #decorations #festive #havesomefun #happinessis #itsthelittlethings #crohns #spoonie #spoonielife #fibro #mastectomy #chronic #invisibleillness #butyoudontlooksick #montana #montanagirl #mylife
Emarie "E" Q. - @chronicall_e Instagram Profile - inst4gram.com
chronicall_e
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Some of the more unique ornaments on our family tree! We have LOADS of snowflake ones (I want a whole snowflake tree) and many with our family name/personalized ones. But these are a bit different. Lol. Obviously the Firefly ones I got Dan one year.

Day 12. How has your illness made you a warrior? By making me have to still function while being a lvl 7 to 10 on an everyday basis. Example to day I was an 8 and sometimes 9.

#spooniechristmaschallenge #spoonieproblems #spoonie #spooniewarrior #spoonielife #chronicwarrior #chronicallyawesome #chronicallyill #chronicillness #chronicpain #invisableillness #copd #asthma #fibro #fibrowarrior #fibromyalgia #justaspoonful #fibroflare
Remember Me Holt - @nativepawsquad Instagram Profile - inst4gram.com
nativepawsquad
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Day 12. How has your illness made you a warrior? By making me have to still function while being a lvl 7 to 10 on an everyday basis. Example to day I was an 8 and sometimes 9. #spooniechristmaschallenge #spoonieproblems #spoonie #spooniewarrior #spo

I have 5 autoimmune diseases, heart problems, a neurological disorder, severe anxiety and a host of other things. I’ve had 16 surgeries. My wrist was replaced at age 39. Do you know how young that is? 4 foot surgeries in the last 2 years and facing tons more surgeries overall. Yesterday, California’s appeal board decided I have no medical need for pain meds or anti-nausea pills. Here’s the start of my public battle to be heard. For all of us to be heard. .
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#rheumatoidarthritis #autoimmunedisease #invisibledisease #invisiblediseases #osteoarthritis #replacedjoints #chronicpain #chronicpainwarrior #rawarrior #spoonie #spoonielife #arthritisassociation #rheumaticdisease #fatigue #alwayssick #chronicallyill
Amanda lizé - @autoimmune_amanda Instagram Profile - inst4gram.com
autoimmune_amanda
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I have 5 autoimmune diseases, heart problems, a neurological disorder, severe anxiety and a host of other things. I’ve had 16 surgeries. My wrist was replaced at age 39. Do you know how young that is? 4 foot surgeries in the last 2 years and facing t

San Jose, California
Today is #woofwednesday ! Here's a cute lil pupper jamming to some music. (Sorry its a little late..) Tags in comments below
💞 - @chronicallyblessed777 Instagram Profile - inst4gram.com
chronicallyblessed777
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Today is #woofwednesday ! Here's a cute lil pupper jamming to some music. (Sorry its a little late..) Tags in comments below

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@chronicallyblessed777 #autoimmunedisease #autoimmunediseaseawareness #autoimmunewarrior #chronicallyblessed #chronicliving #chronicillness #chronicallyill #chronicwarrior #chronicillnessaccount #chronicillnessawareness #chronicdisease #chronicpain #chronicallysick #invisibleillness #invisiblechronicillness #invisiblesickness #instaspoonie #spoonie #spoonielife #spoonies #spooniesupport #spooniewarrior #spoonieaccount #spooniestrong #spoonieliving

excuse that it’s a real mishmash of products but I wanted to give #mggpinklemonade a go!  I’m actually feeling really off today so if anyone’s got any ideas for cheering myself up please do share!  I hope you all have a fab Thursday and remember to look after yourself (not just your skin!) ️ #pinkwednesday #ausbeauty #ausbeautybabes #ausbeautyaddicts #spoonie #skincare
bea - @spoonieskincare Instagram Profile - inst4gram.com
spoonieskincare
0

excuse that it’s a real mishmash of products but I wanted to give #mggpinklemonade a go! I’m actually feeling really off today so if anyone’s got any ideas for cheering myself up please do share! I hope you all have a fab Thursday and remember to l

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#hypothyroidism #thyroid #hashimotos #health #weightloss #autoimmunedisease #hypothyroid #hashimotosdisease #chronicpain #fitness #wellness #diabetes #spoonie #thyroidhealth #adrenalfatigue #chronicillness #cancer #thyroidproblems #functionalmedicine #autoimmune #fitfam #nervedamage #highbloodpressure #keto #eatclean #pcos #weightlossjourney #glutenfree #fitnessmotivation #bhfyp
Monica's Diet Point - @monicasdiet Instagram Profile - inst4gram.com
monicasdiet
0

Losing weight despite Hypothyroidism is now possible. While it causes obesity, faster weight gains.. We help you lose 1-1.5 kgs per week... Change your life now!! Do you have any Diet or Weight loss related queries or problems? Contact us, we’ll talk

So I have my moments when I get caught up in freaking about things I cannot control. Yes, you might have slight control over things but in the end, sometimes your hands are tied. Tonight I had a mini stress panic episode about the medication I’ve been waiting on since September/October. I have no idea what’s really going on besides I think my insurance overturned the decision but nothing is really moving. I keep calling the pharmacy, my doctor, going online to check everything out 20+ times a day. But no one knows anything. I guess this stuff is just sitting somewhere patiently waiting to be handled. And I am totally freaking out if this thing finally gets approved fully. The co-pay will be the next issue to deal with. I see some people get this medication immediately with no issues. I try to not compare myself to others because that’s dangerous territory but I can’t help find myself constantly feeling like everything in my life takes an extra 20 steps. Nothing has ever clicked, or just worked, ever. It’s always an uphill battle. And I think that’s why I end up always feeling so upset about things. I’d like something good to come easy for a change. But I will remind myself to breathe. Things that are meant to be will find their way. I have trust in God’s plan. I really do. So, even though I’m extremely down in the dumps. I am not going to give up. I just need the pick myself up and go back to my center. Just be patient and know things will turn out the way they should. I am only in control of so much, and I cannot go any further. Acceptance is key. Serenity is important. #autoimmunedisease #lupus #lupusawareness #methotrexate #benlysta #chronicillnesswarrior #chronicillness #chronicpain #rheumatoidarthritis #ra #arthritis #butyoudontlooksick #invisibleillness #stress #faith #panicattack #anxiety #breathe #dontgiveup #Godsplan #sle #lupusproblems #gsk #floridablue #insurance #walgreens #pharmacy #spoonie #spoonieproblems
Bianca Miranda |One Tough 🥄nie - @onetoughspoonie Instagram Profile - inst4gram.com
onetoughspoonie
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So I have my moments when I get caught up in freaking about things I cannot control. Yes, you might have slight control over things but in the end, sometimes your hands are tied. Tonight I had a mini stress panic episode about the medication I’ve bee

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@halfwayhealthylife Praying it all works in your favor

@onetoughspoonie @halfwayhealthylife thank you love! I hope so too. 💜🙏🏼

#spoonie #strong #strength #igotthis #endometriosis #pain #awareness #fightlikeagirl #endowarrior
Jay - @your_endo_warrior Instagram Profile - inst4gram.com
your_endo_warrior
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#spoonie #strong #strength #igotthis #endometriosis #pain #awareness #fightlikeagirl #endowarrior

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@your_endo_warrior @littlefilmyfox especially that last line!

@littlefilmyfox @your_endo_warrior Yep!!!! 🤘

Obsessed with my new robe my husband @multitudinal got me to keep me comfy, cozy and warm this winter!  Thanks Love!
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#comfy #comfyoutfit #warm #robe #cozy  #winterfashion #winter #husband #love #chronicallyawesome #chronicillness #chronicpain #koala #chronicallyillbutchronicallycute #ehlersdanlos #ehlersdanlossyndrome #spoonie #spooniewarrior
Kathryn Pakdel - @the_eds_baker Instagram Profile - inst4gram.com
the_eds_baker
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Obsessed with my new robe my husband @multitudinal got me to keep me comfy, cozy and warm this winter! Thanks Love! . . . #comfy #comfyoutfit #warm #robe #cozy #winterfashion #winter #husband #love #chronicallyawesome #chronicillness #chronicpain

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@quanesham You’re adorable! 🥰🥰

@martin.barbra Chronically awesome, indeed. Too cute!

GIVEAWAY!!!@fortyoverlivingwithfibro and I are celebrating our “lush” friendship with free skin care samples with every purchase with me through the end of the year. Read her latest blog post for details. Link in bio.
Beth Day - @simplylushlife Instagram Profile - inst4gram.com
simplylushlife
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GIVEAWAY!!!@fortyoverlivingwithfibro and I are celebrating our “lush” friendship with free skin care samples with every purchase with me through the end of the year. Read her latest blog post for details. Link in bio.

Jupiter, Florida
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@simplylushlife #fibromyalgia #fibrowarrior #spoonie #chronicpain #chronicillness #lymedisease #autoimmunedisease #hypothyroidism #hashimotos #invisibleillness #saferbeauty #betterbeauty #switchtosafer #fibro #lupus #mecfs #cfs #chronicfatigue #keto #paleo #spoonielife #jupiter #ankylosingspondylitis #rheumatoidarthritis

@purelydawn So exciting.

So many thoughts running through my head I don't even know which one to concentrate on... 🤔🤔 .
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#mysenelook #senegirl #senegence #mua #motd #makeup #makeupartist #kristeebeauty #wakeupandmakeup #makeupnmakeovers #makeupaddict #makeupjunkie #sigmabeauty #hudabeauty #mikasabeauty #lipboss #lipsense #anastasiabeverlyhills #norvina #urbandecay #jerseygirl #indigochild #spoonie #rheumatoidarthritis
Kristee Beauty🌺 - @styliskris Instagram Profile - inst4gram.com
styliskris
0

So many thoughts running through my head I don't even know which one to concentrate on... 🤔🤔 . . . #mysenelook #senegirl #senegence #mua #motd #makeup #makeupartist #kristeebeauty #wakeupandmakeup #makeupnmakeovers #makeupaddict #makeupjunkie #sigmab

So I finally got my weighted blanket!! Happy birthday to me!! I’m soooo excited!! I’ve always had anxiety and years again it was so bad I had a hard time functioning in basic every day activities.  While I’m extremely thankful the worst days are behind me I still suffer from some anxiety. This blanket is so calming and super soft!! Also the putter layer unzips and comes off so you can wash the shell!! I got the appropriate weight for my body and even with my chronic illness and pain it doesn’t seem too heavy. I would recommend this to everyone!!
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#weightedblanket #weightedblankets #chronicillness #chronicillnesswarrior #chronicillnessawareness #ibs #ibsawareness #spoonie #spoonielife #spoonieproblems #spooniestrong #lupus #lupusawareness #mctd #mctdawareness #mixedconnectivetissuedisease #anxiety #anxietyrelief #anxietyproblems #anxietyrecovery
Mystic River - @mysticrivermountaincreations Instagram Profile - inst4gram.com
mysticrivermountaincreations
0

So I finally got my weighted blanket!! Happy birthday to me!! I’m soooo excited!! I’ve always had anxiety and years again it was so bad I had a hard time functioning in basic every day activities. While I’m extremely thankful the worst days are behi

Normally these two would be staying up with the hubby instead of going to bed early with me, but they know I'm hurting and have been glued to me all evening. 
Added another doctor to my list today, but luckily no more medications. I don't know that my body could handle any more of them at this point. Instead they are scheduling me for exploratory surgery to see what's going on in there. Hopefully I'll get some answers and finally mark something off my list of medical issues!
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#magicalpuppysnuggles #nursedog #dogsofinstagram #adoptdontshop #love #endometriosis #pittie #lab #snuggles #spoonie #spooniechick #girlproblems #justwantsomeanswers
Sarah Phillips - @ndsailorgirl Instagram Profile - inst4gram.com
ndsailorgirl
0

Normally these two would be staying up with the hubby instead of going to bed early with me, but they know I'm hurting and have been glued to me all evening. Added another doctor to my list today, but luckily no more medications. I don't know that m

Brb I’ll respond when I can function again. Pinky promise. I’m not a bitch. Well, maybe. I’m just a really, really, over tired, and under medicated one who has a limit on social engagement and needs a nap time because she is somewhere between a 3 year old and an 84 year old. You know what I mean? I get cranky. #thisischronicillness .
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(Repost- @crazyjewishmom )
Chronic Pain/IIH/Migraine - @browneyes.thickthighs Instagram Profile - inst4gram.com
browneyes.thickthighs
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Brb I’ll respond when I can function again. Pinky promise. I’m not a bitch. Well, maybe. I’m just a really, really, over tired, and under medicated one who has a limit on social engagement and needs a nap time because she is somewhere between a 3 yea

Comments

@robbinrubio 🙌.. soooo reposting this!

@juliakatd iPhones have an option under “Do not disturb” settings that you can set up an auto reply to send to whoever you choose while your phone is set to “do not disturb”🙌🏼 the more you know

Such a great privilege to be with these two loving, and creative sweeties! Next gen VeggieTales fans~ Old-school VHS movie; picnic by the Christmas tree; art work... Worth. Every. Spoon!  #veggietales #granddaughter #play #lovethem #grateful #happyanniversarytomommyanddaddy #art #spoonie #thrivethursday #chronicillness #ebv #lymedisease #lyme #resilience #spoonielife #selfmanagement #author #bepresent #beingpresent #bethepresent
Cynthia Dainsberg,RN,FCN - @lymesurvivorthriver Instagram Profile - inst4gram.com
lymesurvivorthriver
0

Such a great privilege to be with these two loving, and creative sweeties! Next gen VeggieTales fans~ Old-school VHS movie; picnic by the Christmas tree; art work... Worth. Every. Spoon! #veggietales #granddaughter #play #lovethem #grateful #happyan

Birthday Boy December 13th.
He shares the same birthday as @taylorswift which is my favorite celebrity and musical artist. He listens to her with me every night before bed. It's precious truly. He turns two tomorrow and I'm so proud of what all he has accomplished and done. He is my best friend and so much more. I love him to the moon and back.
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#servicedog #servicedogsofig #servicedogsofinstagram #doggo #dog #dogsofinstagram #doglover #doggomeme #dogs #dogmeme #taylorswift #birthday #chronicillness #disabledandcute #disabledartist #spoonies #spoonie #spoonielife #spooniewarrior
Lillium Wraithwing - @hyrulesheroine Instagram Profile - inst4gram.com
hyrulesheroine
0

Birthday Boy December 13th. He shares the same birthday as @taylorswift which is my favorite celebrity and musical artist. He listens to her with me every night before bed. It's precious truly. He turns two tomorrow and I'm so proud of what all he ha

“Meowy Christmas”  So many questions. Why must my endo belly accompany me everywhere? Why is my “ugly christmas sweater” actually kinda cute?  Why do I look better with that fugly snapchat filter on than without? 
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#endometriosis #endo #endostrong #endosisters #endosister #endoawareness #endometriosisawareness #endowarrior #endobelly #endopain #endometriosispain #infertility #pelvicfloordysfunction #chronicillness #chronicpain #spoonie #invisibleillnessawareness #invisibleillness #fibromyalgia #fibrowarrior #ibs #interstitalcystitis #interstitialcystitisawareness #gastroparesis #hypermobility #mentalhealth #depression #anxiety #ptsd #butyoudontlooksick
Laura Mericle - @lauraaaannn Instagram Profile - inst4gram.com
lauraaaannn
1

“Meowy Christmas” So many questions. Why must my endo belly accompany me everywhere? Why is my “ugly christmas sweater” actually kinda cute? Why do I look better with that fugly snapchat filter on than without? .. .. #endometriosis #endo #endostro

Travelling with fibro, hanging with my squad of elderly women waiting to board flight️️️
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#fibro #fibromyalgia #ibs #fibrowarrior #chronic #chronicpain #chronicillness #fibrofighter #healing #ibswarrier #fightfibro #fightibs #support #invisibleillness #irritablebowelsyndrome #spoonie #spoonies #pain #fibrofog #nausea #chronicillnesswarrior #migraine #fatigue #noenergy #spoonielife #warrior #flare #travellingwithfibro
Fibro.ibs.combat - @fibro.ibs.combat Instagram Profile - inst4gram.com
fibro.ibs.combat
3

Travelling with fibro, hanging with my squad of elderly women waiting to board flight️️️ . . . . . . . . . . . . . . . . . . . #fibro #fibromyalgia #ibs #fibrowarrior #chronic #chronicpain #chronicillness #fibrofighter #healing #ibswarrier #fightfibr

Comments

@fibro.ibs.combat @dildar_ahmet 🤣💕

@sobiasmiles Love you! Safe travels ❤️❤️❤️

My friend is dying, and quickly going downhill - they're currently in hospice, and the ONLY THING they would like is to meet you @brendonurie @panicatthedisco @alltimelow @alexgaskarth 
Emet is a trans disabled Jewish activist who has done SO MUCH to help others in their life, and it would be so, so wonderful if we could make this one thing happen for them. I'm too far away to go visit, but I can hopefully help make this happen at least. 
PLEASE HELP.

#panicatthedisco #alltimelow
#brendonurie #alexgaskarth #eds #ehlersdanlossyndrome #lastwish #makeawish #hospice #disabled #disability #chronicallyill #chronicillness #spoonie #spooniewarrior #trans #transisbeautiful #judaism
Megan Harrison - @emkay_day.by.day Instagram Profile - inst4gram.com
emkay_day.by.day
0

My friend is dying, and quickly going downhill - they're currently in hospice, and the ONLY THING they would like is to meet you @brendonurie @panicatthedisco @alltimelow @alexgaskarth Emet is a trans disabled Jewish activist who has done SO MUCH to

“Going with the flow” is going to be my mantra for 2019
.
I’ve spent many moons attempting to ebb with the universe, without full commitment - and I think it’s time to dive in
.
Yesterday I came home after work and got #onthemat, but found my body was resisting
.
I began to slow down, modify as needed, rest in between until finally I came to a complete sit still and I had to stop
.
I began to go into tremors, my brain was throbbing and my breath became shallow and labored .

A million thoughts ran through my brain fog head while I continued to breathe
.
“Allergies? Stress? A minor concussion from an earlier blow to the head?”
.
I doubled my steroids and found that laying on the couch and staring at the wall was my only way to move through it
.
It took an entire evening of waiting it out, waking up every hour and rising in the morning to finally realize it was the creep up of a crisis
.
Understanding and differentiating pains, sickness, ailments and traumas is absolutely mind boggling with this disease and I sometimes wonder if I will ever figure it out
.
I had no choice but to go with the flow, and spent the day in bed, doubling my dose and heavily taking in salt
.
24 hours later and I’m finally not feeling the pain and fatigue of the last day and a half
.
My body is the absolute best reminder that sometimes you don’t have a choice and you have to let your plans go and do what is presented to you in the moment
.
Plans are becoming a thing of the past, and I think the universe is tired of telling me to embrace my new body flow of life and that it’s time for me to truly move into this divine space it is creating for me
.
I’m beyond grateful to the individuals who have shown love and support through kind words, visits, offering to take me to the hospital and gifts of chocolate and kombucha - you humans are true magic and beauty - I truly thank you for being here for me time and time again during uncomfortable and scary times
.
It’s time to give in and “Go with the flow” .
#addisonsdisease 
#adrenaldisease 
#spoonie 
#spoonielife 
#chronicillness 
#chronicillnesswarrior 
#gowiththeflow 
#letitgo 
#justbe 
#createspace
Vanessa Marie 🧘‍♀️🧜‍♀️🦄🥕🥄✨🌕🏕 - @seaspriteyogi Instagram Profile - inst4gram.com
seaspriteyogi
0

“Going with the flow” is going to be my mantra for 2019 . I’ve spent many moons attempting to ebb with the universe, without full commitment - and I think it’s time to dive in . Yesterday I came home after work and got #onthemat , but found my body wa

Life with an #InvisibleDisease. #TrustMe! 🤣🤦‍️ •
•
•
•
•

#LifeWithLyme #ButYouDontLookSick #Healing #lymediseaseawareness #Lymie #Spoonie #InvisibleIllness #SnapChatFilters #TyVSLyme: #Road2Remission  #Chapter29 #SickGirlSwag... w/ just a dollop of #Humor
Ty 💚💪 - @ty_inspire Instagram Profile - inst4gram.com
ty_inspire
4

Life with an #invisibledisease . #trustme ! 🤣🤦‍️ • • • • • #lifewithlyme #butyoudontlooksick #healing #lymediseaseawareness #lymie #spoonie #invisibleillness #snapchatfilters #tyvslyme : #road2remission #chapter29 #sickgirlswag ... w/ just a dollop of

Comments

@2day2mar4eva_mrshassan That scared me I wasn't expecting that ..😂

@ty_inspire @2day2mar4eva_mrshassan 🤣🤣🤣🤣🤣🤣🤣... My bad 🤗💚💪

Today I have mainly been foraging, looking pretty and scratching at my clay pyramid. Squeaking of pyramids, idk why the Ancient Egyptians worshipped cats...they should have glorified hamstebs instead!  #potatoprincess
Poppy The Syrian Hamsteb 🌀 - @syrianpoppy Instagram Profile - inst4gram.com
syrianpoppy
1

Today I have mainly been foraging, looking pretty and scratching at my clay pyramid. Squeaking of pyramids, idk why the Ancient Egyptians worshipped cats...they should have glorified hamstebs instead! #potatoprincess

Comments

@syrianpoppy . . . . . #cute #beautiful #prettypets #naturalpet #forage #hamster #hammy #ukhamsters #syrianhamster #smallanimalsofinstagram #pet #petsofinstagram #hamsterlove #hamstergram #hamstersofinstagram #animalsofinstagram #furbaby #poppy #poppyharlow #supportpet #therapypet #mentalhealth #fibromyalgia #chronicpain #chronicillness #spoonie #recovery

Anyone else? .
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#enough #downforthecount #zzz #done #invisibleillness #chronicpain #hypermobility #connectivetissueissue #raynauds #essentialtremor #scoliosis #peripheralneuropathy #butyoudontlooksick #spoonie
Allison Moeller - @allison.moeller Instagram Profile - inst4gram.com
allison.moeller
2

Anyone else? . . . . . . . . #enough #downforthecount #zzz #done #invisibleillness #chronicpain #hypermobility #connectivetissueissue #raynauds #essentialtremor #scoliosis #peripheralneuropathy #butyoudontlooksick #spoonie

Comments

@alejandro.delrio.353 I had kidney cancer and now peripheral neuropathy its like standing on fire at work for 10 hours every day and getting worst

@michelleleanne79 I agree!!!

I'm posting this for absolutely no reason. 

#stockphotos #stockphotography #funnystockphotos #whythough #random #bear #mountains #whatamilookingat #cute #cuddly #nature #sky #clouds #trees #graphicdesign #causewhynot #spoonie #aspie #itoldyouiwassick #linewalkers
I Told You I Was Sick - @_itoldyouiwassick_ Instagram Profile - inst4gram.com
_itoldyouiwassick_
5

I'm posting this for absolutely no reason. #stockphotos #stockphotography #funnystockphotos #whythough #random #bear #mountains #whatamilookingat #cute #cuddly #nature #sky #clouds #trees #graphicdesign #causewhynot #spoonie #aspie #itoldyouiwassic

Comments

@_itoldyouiwassick_ @amberyesamber It is awfully cute for some reason. 😊

@amberyesamber @_itoldyouiwassick_ it reminds me of the Snuggle fabric softener bear.

Be a spark of goodness in this world. #runforyourlife #running4urlife
RunForYourLife - @running4urlife Instagram Profile - inst4gram.com
running4urlife
1

Be a spark of goodness in this world. #runforyourlife #running4urlife

Brussels, Belgium
Comments

@running4urlife #anxiety #socialanxiety #introvert #abuse #anarecovery #chronicpain #chronicillness #depression #invisibledisease #invisibleillness #invisibledisability #lgbt #lgbtqia #mentalhealth #mentalillness #ptsd #recovery #recoverywarrior #spoonie #staystrong #suicideprevention #spoonielife #semicolon #smallyoutuber #youtube #IAmACreator #nosmallcreators #traveltribe

*Pain in abdomen, hips, legs, rib cage, and an all over flu-like achy-ness *Nausea *Diarrhea
*Constipation
*Headaches
*Pain with intercourse
*Heavy menstrual flow
*Irregular periods
*Debilitating cramps
*Severe breast tenderness
*Endo belly / painful abdominal distention *Food sensitivities *Weakened immune system / sick often
*Anxiety
*Depression
*Brain Fog / forgetfulness
*Severe fatigue
*Ovarian cysts / ruptured cysts
*Infertility .
Just to name a few of mine. 🤷‍️ do you experience any symptoms here that I didn’t list?
Well ✨ With ✨ Endo - @wellwithendo Instagram Profile - inst4gram.com
wellwithendo
1

*Pain in abdomen, hips, legs, rib cage, and an all over flu-like achy-ness *Nausea *Diarrhea *Constipation *Headaches *Pain with intercourse *Heavy menstrual flow *Irregular periods *Debilitating cramps *Severe breast tenderness *Endo belly / painful

Rancho Santa Margarita, California
Comments

@wellwithendo . . . . . . . #endometriosis #endowarrior #endosisters #chronicpain #infertility #warriorwomen #endo #fuckendo #naturalhealing #aromatherapy #homeopathic #endodiet #chronicillness #antiinflammatory #womenwithendo #endometriosisawareness #hystorectomy #mentalhealth #anxiety #depression #healthylifestyle #cleanliving #toxinfree #spoonie #symptoms #womensupportingwomen #warriorwomen

Telling myself all the Southern California positive vibes stuff. My adrenal glands kicked my ass today.  Here’s me with a unicorn piñata on my head at my little cousin’s birthday party last month. I was pretty worn out that day too but you’d never know it from looking at me.
Got That Endo - @gotthatendo Instagram Profile - inst4gram.com
gotthatendo
3

Telling myself all the Southern California positive vibes stuff. My adrenal glands kicked my ass today. Here’s me with a unicorn piñata on my head at my little cousin’s birthday party last month. I was pretty worn out that day too but you’d never kn

Comments

@spooniespice Que Bonita!! 💖🦄💖

@gotthatendo @spooniespice 😋💛😋💛

Another theraputic weighted blanket order complete  and this one is for a special little boy who I THINK is going to love it ️ Jamie, I hope your tiny guy finds this so helpful and calming! I can't wait to see what he thinks! It was so fun bringing this to life for him!
....
Have I mentioned Scott and I absolutely love doing this? It's not just blanket making to us. This is about so much more. It's about bringing a smile to a kiddos face, calming their nerves/anxiety/stress/overstimulated brain, and maybe making the days just a little bit easier for a parent who is coping with tough battle of watching their kiddo struggle with it. As parents of a child with anxiety, (and me suffering from it myself!) we can empathize with how emotional it can be. (The adult version of these blankets do the same thing BTW if you're struggling with anxiety, chronic pain, etc too! I LOVE mine). These blankets each have a story and a purpose. And we love that ️ so please keep the orders and the stories coming. and yes, Scott helps me! We do this together, as we do most everything ️)
...
My heart is happy. Still. ️ Enjoy, Mister Amos!
..
.
#diygifts #anxietyrelief #weightedblanket #anxietyhelp #potsie #sewingproject #christmas #diyblanket #momswhosew #chronicillness #spooniegifts #spoonie #mompreneur #diychristmas #giftgiving
Molly Willey - @spooniegirlfitness Instagram Profile - inst4gram.com
spooniegirlfitness
0

Another theraputic weighted blanket order complete and this one is for a special little boy who I THINK is going to love it ️ Jamie, I hope your tiny guy finds this so helpful and calming! I can't wait to see what he thinks! It was so fun bringing t

Sebago Lake, Maine
I was personally sent this from a fellow R.A. Warrior who started her own foundation. I’m so grateful she took the time out of her busy life to think of me. 
#makeitcount @makeitcount4dani @mic4d_foundation 
_______________________________________________________
#DMARDS  #livingwithra #invisibleillnessawareness #autoimmunedisease #chronicillness #invisibleillness #chronicillnesswarrior #spoonieproblems #spoonie #JRA #JIA #rheumatoidarthritis #rheumatoidarthritis  #rheumatoidarthritissucks #spoons #spoonie #spoonielife #spooniesupport #spooniewarrior #spoonieproblems #spooniestrong #youdontlooksick #spooniesupport #Rheum4today #spoonielife #pain #depression #majordepressivedisorder #anxiety #pain #fatigue #autoimmunediseases #juvenileidopathicarthritis #juvenilerheumatoidarthritis #juvenilerheumatoidarthritisawareness
Nicole - @rheum4today Instagram Profile - inst4gram.com
rheum4today
2

I was personally sent this from a fellow R.A. Warrior who started her own foundation. I’m so grateful she took the time out of her busy life to think of me. #makeitcount @makeitcount4dani @mic4d_foundation __________________________________________

Massachusetts
Comments

@makeitcount4dani Thank you so much! I truly believe we can help each other do more and be more! This disease isn’t fun, but with support from people who get it, it can make it a tad bit easier! MAKE IT COUNT

@mic4d_foundation Wait until you see the new towels that are being printed!!!! They are going to have the new Phoenix which has risen through the frustration and exhausting challenges of living with RA! YOU got this - WE got this! MAKE IT COUNT!

My girl likes to take pictures of me falling alseep....it’s a little weird but I love her so I’m ok with it
Bowie - @bowie_the_service_hound Instagram Profile - inst4gram.com
bowie_the_service_hound
2

My girl likes to take pictures of me falling alseep....it’s a little weird but I love her so I’m ok with it

Phoenix, Arizona
Comments

@bowie_the_service_hound #heelergram #blueheelersofinstagram #servicedogintraining #tasktrained #servicedog #sdit #respectthevest #assistancedog #chronicillness #spoonie #servicedogsofinstagram #dysautonomia #potsie #lymedisease #puppy #dogsofinstagram #heelernation #acd_feature #blueheelerpuppy #puppy #dogsofaustin #dogsof512

@halcombmom How adorable ‘

Christmas in New Orleans ft. The St. Charles streetcar! 
••
I’m not going to lie, things are very tough right now. School is breaking me to my core. My health has significantly impacted my success in several of my courses and the pressure to succeed in finals is immense. It is difficult to not feel like a failure when I can’t do my best due to my health and disabilities. This semester has been full of new diagnoses, new treatments, and many learning curves. Going to school in general with significant health issues is hard and draining. But I want to be here, I want to learn and I want to succeed. College has been my dream for years, and it is not everyday one receives a full ride to a prestigious university. I do not want to waste my education. So I will work harder, try better, persist on to reach the full potential that I know I possess deep inside. My grades do not define me, my abilities, my effort, or my worth. Winnie is helping me get through this semester and will continue to assist me in reaching my goals despite my illnesses
Winnie the Wonder Pup - @wondrouswinifred Instagram Profile - inst4gram.com
wondrouswinifred
4

Christmas in New Orleans ft. The St. Charles streetcar! •• I’m not going to lie, things are very tough right now. School is breaking me to my core. My health has significantly impacted my success in several of my courses and the pressure to succeed

St. Charles Streetcar
Comments

@wondrouswinifred @michaelakirkmire 😘😘

@pawpalsco 😍😍Adorable!

One thing I’ve definitely learned about #IBD is the importance of a good IBD specialist.... Having a good relationship with your GI is so important you have to be able to be an active member of your treatment team #ibdbuttloadofprizes @thegreatbm #spoonie #chronicillness #butyoudontlooksick #ibdmom #crohnsdisease #selfadvocacy
Meredith Smolen - @mere282 Instagram Profile - inst4gram.com
mere282
0

One thing I’ve definitely learned about #ibd is the importance of a good IBD specialist.... Having a good relationship with your GI is so important you have to be able to be an active member of your treatment team #ibdbuttloadofprizes @thegreatbm #sp

*DAY 12: HOW HAS YOUR ILLNESS MADE YOU A WARRIOR?*
To be honest, I don't feel much like a warrior most days. Usually I feel like I barely make it through each day. But I have been given a platform with which to share my struggles and successes and that's been a blessing. I've also found some amazing friends who say I inspire them, while being amazingly inspired by them. I guess I'm a warrior in that I don't give up. I can't. Sometimes I want to, but that's not how I want to live my life. My life is definitely not how I pictured it would be, but I want to love life and live each day to the fullest. Sometimes just getting out of bed is the best thing I do in a day, but I always do something. I never want to quit trying and that makes me a warrior! 
#beatms #curems #disablednotunable #thisisms #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #cpap #sleepapnea #gastroperisis #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness #ourpainlife
disabled.not.unable - @disabled.not.unable Instagram Profile - inst4gram.com
disabled.not.unable
0

*DAY 12: HOW HAS YOUR ILLNESS MADE YOU A WARRIOR?* To be honest, I don't feel much like a warrior most days. Usually I feel like I barely make it through each day. But I have been given a platform with which to share my struggles and successes and th

Happy Holidays! Starts Thursday! Tagging- @candycandee @peaceloveyogamama @ecclestia to join in on the fun #Repost @gomlemumseklumpen (@get_repost)
・・・
#santassassyyogis

Joining this challenge tomorrow 
.
.
Repost @skinnydoberman

Baby it’s cold outside ️ ️ Join us! ️ Come heat things up with some holiday yoga fun  
Announcing #santassassyyogis  A 12 day yoga challenge where you bring the sass, get in the holiday spirit, and unleash your yoga creativity.

Join us December 13-24

How to play:
 Follow all hosts and sponsors
Be sure to set your profile to public
 his flyer and tag 2 or 3 friends
 Use the hashtag #santassassyyogis in all your posts and tag all hosts and sponsors
 Follow along and spread some love and holiday spirit to all your fellow yogis
 Have fun and get creative

Sassy hosts:
@crimsnmacchiato 
@valquiriafo 
@skinnydoberman 
@sun_city_yogi 
@bootsiepachi

Generous Sponsors:
@simplyacboutique 
@meranda_shop 
@danyelle.woods 
@malasemantras 
@soblissedapparel 
@the_karmic_chameleon 
@treelanceyoga 
@morpho_jewels 
@theblessedyogi_au 
@soulfulwear 
@c2v.accessories

12 Days of poses
 Dec 13 Puppy pose
 Dec 14 Sugarcane pode
 Dec 15 Lunge
 Dec 16 Boat pose
 Dec 17 Mermaid
 Dec 18 Tree pose
 Dec 19 Wheel pose
 Dec 20 Splits
 Dec 21 Bow pose
 Dec 22 Bird of Paradise
 Dec 23 Camel pose
 Dec 24 Yogi’s choice

#yoga #yogi #christmasyogachallenge #igchristmasyogachallenge

#challengethyselfdaily #yogafriends #yogafamily #decemberyogachallenge #yogaaddict #yogalovers

#yogachallenge

#balance #flexibility #selflove #selfcare #bodypositive

#Yoga4Friendship #christmasyoga

#iamdoingthisforme #yogaforhealth #invisibleillness #chronicillness #uctd #spoonie #spoonieyoga
Melissa C.- P.T., M.H.A. - @lotusliving4life Instagram Profile - inst4gram.com
lotusliving4life
1

Happy Holidays! Starts Thursday! Tagging- @candycandee @peaceloveyogamama @ecclestia to join in on the fun #repost @gomlemumseklumpen (@get_repost ) ・・・ #santassassyyogis Joining this challenge tomorrow . . Repost @skinnydoberman Baby it’s cold out

Comments

@iammissjayy 👋

Don’t worry y’all, only one more day of vacation & then you can browse Instagram in peace
Kaelah Tristani - @kaelahelyse Instagram Profile - inst4gram.com
kaelahelyse
6

Don’t worry y’all, only one more day of vacation & then you can browse Instagram in peace

Comments

@kaelahelyse @kateb318 would love to! I’ll text you when I get back 💕

@kaelahelyse . . . . .#vscom #vscommunity #yoga #yogi #yogalife #barre #barrefitness #spoonie #spoonielife #chronicpain #chronicillness #breastimplantillness #bodypositivity #endometriosis #endometriosisawareness #endostrong #phillyphotography #philly #philadelphia #fitspo #fitspiration #healthyliving #thriftlife #fashionblogger #ootd #outfitinspo #mytargetstyle #travelgram #travelfeed #travelblogger

Had to get a new CGM (Continuous Glucose Monitor) installed today because the one I’ve been wearing for the last 2 weeks had a malfunction. Due to that malfunction it only recorded 1 out of the 14 days so unfortunately we have to redo it for another 2 weeks. This also means we will have to postpone my hospital admittance (that was supposed to happen tomorrow) for the overnight insulinoma fasting test until after the holidays. 
I’m honestly relieved it isn’t happening tomorrow because I’m still recovering from being in the hospital this past weekend. It hit me hard and I haven’t been right since I got home. The thought of being admitted again tomorrow for a 24 hour fast seems unfathomable. Although the CGM malfunction was inconvenient and annoying I’m grateful it has allowed me more time to recover and prepare for another hospital stay.  I was having a lot of lightheadedness and nausea today so my girlfriend @amyvforme drove me to the Endocrinologist. I’m very lucky to have a girlfriend like Amy who always wants to help and wants to listen and remember what questions I need to ask when I’m in these doctor appointments. The brain fog and low blood sugar issues make it very challenging for me to retain all the info and instructions my docs tell me. It helps so much to have her there 🦋 Thank you Amy ️ @caregiver_corner
Sara Esidore - @thelupustrainer Instagram Profile - inst4gram.com
thelupustrainer
17

Had to get a new CGM (Continuous Glucose Monitor) installed today because the one I’ve been wearing for the last 2 weeks had a malfunction. Due to that malfunction it only recorded 1 out of the 14 days so unfortunately we have to redo it for another

Comments

@thelupustrainer @triciabella34 yes I have! Lupus/Hashimotos seems to be a pretty common duo. I’m sorry you’re going through all this, Lupus in of itself is enough! Hang in there love 🦋💪💜💜💜

@triciabella34 @thelupustrainer ok lol that's what my dr told me I was just curious if other people had developed the hashimotos as well it sucks !!! hope you feel better soon! hugs xoxo

Pushing my body to it’s limits while trying to open up my heart = gentle heart openers during my yoga after yoga. How was your hump day?
Sean McMullin | Wellness Coach - @omseany Instagram Profile - inst4gram.com
omseany
7

Pushing my body to it’s limits while trying to open up my heart = gentle heart openers during my yoga after yoga. How was your hump day?

Hoboken, New Jersey
Comments

@omseany @herbhales is there really anything more healing than heart openers? They go deep ❤️✨

@omseany @lezette.marie awww always supporting ❤️youuuu!

Trader Joe’s kettle cooked chicken soup with gnocchi and whipping cream. They were giving out samples of this concoction and I was like “yes, please!” A very good option for spoonies.
#traderjoes #gnocchi #easydinner #fibrofood #foodie #comfortfood #fibromyalgia #chronicpain #chronicillness #invisibleillness #invisibledisability #cripplepunk #disabledandcute #disBABEled #spoonie #spoonielife #spooniepower #myalgicencephalomyelitis #chronicfatiguesyndrome #mecfs
megan - @gardeninherface Instagram Profile - inst4gram.com
gardeninherface
0

Trader Joe’s kettle cooked chicken soup with gnocchi and whipping cream. They were giving out samples of this concoction and I was like “yes, please!” A very good option for spoonies. #traderjoes #gnocchi #easydinner #fibrofood #foodie #comfortfood #